Good morning,
Welcome back! Please sit and pour the tea. As usual the muffins are coming out of the oven shortly. Today we are having pumpkin nut muffins. Sit back, enjoy as I tell you of my journey back to the hearing world.
The BIG day had arrived. Knowing that each person's cause of deafness is so unique and that while many have a successful implant, some do not, I really was scared. Having the implant meant that if it did not work for me, then even those "sonic blip noises" I had heard were gone forever.
My son was in TX in the Air Force. My oldest daughter had gone with her boyfriend to his parents in PA. So only my husband and younger daughter went with me to the "hookup". This is when the audiologist and the computer "make a specific program or programs just for me and my CI". This is called "mapping".
I was between total fear and total joy waiting for the mapping to be complete. I could hardly keep the tears from slipping down my cheeks. I had missd the hearing world I knew more than I even wanted to admit to myself. When I lost my hearing, I had to see the glass half full, not half empty to survive. I had to look at faces, to see the sunsets, sunrises, the beauty in every day life to balance the overwhelming loss of my hearing. Gradually, over time, it became my life. Seeing not hearing people. Living in my "glass bubble". A beautiful quote by Helen Keller sums it up, "Blindness cuts you off from things, deafness cuts you off from people". So as I sit and wait, fear and hope mingle and drain me emotionally.
We are ready! Everything is programmed and I am ready to turn on my CI. The internal component of my CI is inside my skull but is not working until I turn the external component on. The audiologist turns it on. There is a lot of "white noise" in the background. She asks Terry and Kellie to say something to me, one at a time. The tears start and don't stop. I can actually hear what sounds like Mickey Mouse thru a tunnel! But oh Thank you God I can hear that. After 13 years, I clutch at those "echo-like sounds" and keep thanking God over and over. My glass bubble has shattered!
We go thru this several times. The audiologist adjusts the computer settings and we try again. A bit clearer, but definitely Mickey Mouse. Both my daughter and husband sound like Mickey Mouse, I know they are voices, but could not tell which is which, they sound alike.
At this point, having read many successful CI journeys back to sound, I am again feeling sad but still seeing the glass half full. I had been told going into this that my cochlear was smaller than most and that the full array that is place in the cochlear to stimulate electrical implues would not all fit. So as I sit hearing Mickey try to talk to me, I wish it were clearer, much clearer. Yet, it is not sonic blip either. My audiologist tells me it takes time, my hearing nerve has been without hearing for 13 years, it will take time.
We leave an go to lunch to celebrate. I am not truly sure I want to "celebrate". I have to admit I expcted more. Should not have, but I did. The restaurant is very loud. Very loud! I cannot make out most of the sounds. I turn down my volume, it's too loud! I can see my daughter's disappointment and it is breaking my heart as I did this for her as much as for myself. Out of my 3 children she has inherited the BOR syndrome and hearing loss. I wanted to give her a future to look forward to. I wanted her to know that despite the progressive hearing loss she had, if it came to total deafness there was the CI. I felt I let her down.
We hug goodby. She leaves to go back to work. Terry opens the car door for me. Wait! I ask Terry to do the locks again. Then wide eyed in wonder I know that sound, I KNOW those are car locks. We sit in the car for 10 minutes in the parking lot locking and unlocking the car doors. Tears are really coming fast and furious now. I can hear! I can hear that sound clearly and know what it is. I can hear again!
Terry is talking to me and still signing because he still is Mickey talking thru a tunnel and I cannot understand him.
We finally pull out of the parking lot.I clearly hear the directional signal and know it. Since we are now in traffic, I don't ask him to play with that for 10 minutes! Then incredibly, I hear, "wop wop wop" and KNOW its the tires on the pavement. I have stopped crying and am now very excited. I am a child delighting in the simpliest of sounds. After 13 years those sounds are the sweetest in the world. I start to fiddle with my controls on my CI because the 'wop wop wop" of the tires has stopped. Something is wrong with my CI. Terry understands and signs to me, "look at the road". I do and it is brand new pavement. It wasn't my CI, it was the road!
We stop at a light and I hear a radio. I ask Terry if the radio is on, but he says no. We are in the car with the a/c on and I KNOW I hear a radio. Terry signs to me, "its the car next to us". Incredible that I could hear and understand it was a radio.
We are home now and Terry goes upstairs. I go find a music box I had saved. I love music boxes, had several. When I knew I would never hear again I smashed all by one, out of sheer frustration. While Terry is upstairs, I wind up the music box, but hold it so it does not start. I am so scared to know what music may sound like. After what seemed like forever, I let go and the pure, sweet music plays. My uncontrolable sobbing brings Terry on the run quickly. His fear turns to joy as I tell him, "Honey, it is beautiful, I can hear the music and its not Mickey Mouse sounds, it just beautiful music".
Emotionally drained from the day, I take a nap. I have to go back to work the next day. Later I come down stairs and Terry starts to talk and sign to me. In total wonder, I walk up to him, take his hands and hold them. "Stop signing", I can hear and understand you a little bit, just talk to me". My sweet, caring husband of 5 years, I had never heard his voice until this moment. We are both crying, laughing and oh what a sexy laugh my guy has!
We hold hands and thank God for this miracle in our lives.
Over the next three days, almost all the sounds came back that I knew and remembered. Voices started to sound like voices not Mickey Mouse. Words became clearer but I still lip read a bit to aid what I was hearing.
Thursday is Thanksgiving and boy am I thankful!
Thank you for stopping by to visit today. Please come back again to find out what is was like for each of my 3 children, now adults to be able to talk to their mom again after 13 long years.
I would sincerely appreciate your comments, please take a moment to let me know you stopped by.
Have a beatiful day!
Lynn